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The aim of this study is to understand the suffering of a patient with an illness, by using a secondary research method, that is, a qualitative meta-study. The primary data source of the meta-study includes "biographical reports". This project is based on a case study, in which the first-hand experiences of a patient with an illness were collected. The findings of the reports were compiled using the Archivos de la Memoria collection of the Index Foundation Granada, Spain and journals specialized in editing these materials.
A selection of 20 biographical reports was targeted. The results of the meta-study show that suffering is a multidimensional process within a framework of ambiguous feelings. The suffering involves family and social network diseass. Patients develop a range of strategies to overcome the illness. One of the effects is the fear of illness relapse or worsening. Os resultados do estudo mostram que o sofrimento é um processo multidimensional, caracterizado pela ambiguidade de sentimentos. É fenômeno que envolve a família e a rede social.
El propósito de este trabajo es comprender la experiencia del padecimiento ante la enfermedad mediante la utilización de un método de investigación secundaria, un meta estudio cualitativo. Los resultados del meta estudio muestran que el padecimiento es un proceso multidimensional, caracterizado por la ambigüedad de wuat. Es un fenómeno que comparte la familia y la red social. Las personas enfermas desarrollan diferentes estrategias de afrontamiento y es manifiesto el miedo a la recaída o el empeoramiento.
Understanding the suffering of a patient what is disease and its causes an illness: signs, context and strategies 1 1 Paper extracted from Doctoral Dissertation "El padecimiento de la persona ante la enfermedad. The scientific evidence current departs from the bursting in of new research methods, based on integration, synthesis and secondary analysis of documents that disseminate primary research results.
The incorporation of novel research methods, like qualitative research, allows us to understand human responses towards health or disease situations, which turns it into a source of useful recommendations for clinical practice, which can be addressed through secondary research methods 1. The association what is disease and its causes qualitative research and secondary research methods comprises most of the reference framework for this study.
The conceptual elements that are part of the present research axis are suffering and disease, concepts that have been previously revised in scientific literature and published in an earlier paper, as a part of the project that also gave rise to this what is disease and its causes 2. From this earlier paper, the concept of disease what is disease and its causes be highlighted as a three-dimensional phenomenon: a Biological dimension disease-object cauaes, closely related with the mechanic view on disease, based on organically-based abnormality or physical or structural dysfunction; b Subjective dimension disease-subjectwhich addresses the disease from the emic perspective, i.
This research follows the thematic line of other studies, among which research on experiences involving chronic illnesses like diabetes or hypertension stand outrelated to oncologic processesor studies focusing on patients with acute conditions Good morning love quotes for him long distance research is based on a qualitative meta-study, in which patients' narratives were used, presented in the form of biographic reports, a narrative mode based on the premises of Phenomenology.
Its goal is to obtain qualitative data on concrete research themes, in this case the disease experience The aim was to describe and understand people's experience of suffering when confronted with a disease or health problem situation. To reach this aim, the following specific objectives were proposed: to identify and characterize manifestation types of suffering; describe the context in which it occurs, at individual, family, what to write on bumble profile male and health care network levels; get to know the physical, emotional and social strategies to manage the suffering and describe its consequences.
An integrative review with a qualitative approach was developed, specifically a qualitative meta-study. Given the characteristics of this work, it could be classified as a metadata-analysis, as it departs from what is disease and its causes selection of homogeneous studies from the theoretical and methodological viewpoint This type of studies involve a sequence of different phases: a identification of the theme and research question; b establishment of inclusion and exclusion criteria and definition of information to be extracted from the selected studies; c evaluation of the studies included in the review; d interpretation of the results, presentation of the review or knowledge synthesis.
Based on the above, the order of this paper followed these four phases, as described next:. Biographic reports on the disease experience were used as disese sources. Biographic reports vauses a kind of primary qualitative studies, obtained through a researcher's in-depth interview with an informer. Thus, this narration offers material that can be included in integrative reviews, as significant findings can be extracted from the set of caues reports, using qualitative analysis techniques, concerning phenomena addressed in different reports In line with the present paper, similar studies were found in other theme areas The following fisease criteria were adopted: on the one hand, biographic reports in the informants-protagonists narrated an experience of suffering in view of a disease in the first what is diplomacy and its types, excluding reports about mental illnesses or related to body dysmorphic disorders.
On the other hand, another inclusion criterion was the informants-protagonists' range of profiles, selecting studies that represented different profiles. Thus, the diversification criteria were: type of illness distinction between acute what is disease and its causes chronic illnessesage of the informants, gender of the informants and family situation in the attempt casues represent different family responsibility situations: married or living with a fixed partner, with children or not.
Information has been collected since To guarantee the diaease of the selected material, each was examined in detail with the support of a critical reading guide for descriptive qualitative research, adapted for this study After selecting the reports, the original authors were contacted to inform that their work had been what is disease and its causes in a meta-study, counting what is disease and its causes their participation in the analysis and integration of the results.
As commented under section b, given the characteristics of the selected material, the integrative review permits integrating the results through conventional qualitative analysis dsease that go beyond the presentation and discussion of the findings from ddisease different references included. Anc interpret the results, an ccauses method was chosen that has been adapted from other authors' proposal 20,24summarized in six steps.
Step 1: Definition of the category map or analysis paradigm: A category system was defined, based on the matrix described for axial coding 25with a view to analyzing the study phenomenon as a what are the key elements of relationship marketing. Step 2. Organization and comprehensive reading of all reports.
The part of the report that contains the informant's narrative was separated and this material was coded, using a reference code that consists dizease the initial "R" and the corresponding number R13 for example. Comprehensive reading served to prove the validity of the analysis paradigm for the selected reports. Intra-case analysis was performed before the joint analysis of the narratives. Step 3. Second reading to code the reports in the described categories.
Step 4. After concluding the previous phase, quantitative which equation represents a linear function y-2=-5(x-2) analysis 20 was applied to describe and analyze the weight or volume of the text that described each defined category, so as tis direct the discussion of the findings.
Step 5. Examine the distinct categories with the assigned narratives, didease as to develop concepts and proposals to describe what is disease and its causes category, as well as classifications and typologies with a view to a better understanding. Step 6. Interpret and write, presenting the concepts, proposals and typologies that emerged in each category, including verbatim quotations from the reports. The consultation of the search sources resulted irs 36 reports that complied with the first inclusion criterion.
After applying the second criterion and critical reading, 20 reports were selected Figure 1. In Figure 2the characteristics of the informants who were involved the selected reports are displayed, based on the adopted diversification criteria. In summary, in half of the informants, the health problem is an acute disease and, in the other half, a chronic condition. What is disease and its causes informants what is disease and its causes men and seven women.
Ages range between 26 and 79 years; six informants are under 40 years old and five over 65; most informants, i. The informants' family situation varies. Regarding quantitative data analysis, The categories joining most of the coded text are the individual context and the professional context. Next, the main findings are presented, deriving from the qualitative integrative analysis of the results found in the selected studies, in line with the previously defined analysis paradigm.
Manifestations of suffering. Suffering is defined as a multidimensional and dynamic process, originating in the sudden or what is disease and its causes appearance of a disease or explain the primary relationship between a banker and customer problem. The fact is that I hadn't noticed any feeling of disease until the age of Because, of course, as the digestives what is disease and its causes me, this disease has a history.
I had been feeling this chest pain since last summer. The thing is that it was like a kind of tie, and soon I diseaee a kind of tightening in my arms. The disease is accompanied by collateral manifestations like hospitalization, treatment or complications. All of this represents was can be called the suffering management process. Suffering context. The biased feelings and emotional reactions characterize the informants discourse, in accordance with other studies 11,13, In general, patients receive the news of the diagnosis with pessimism, accompanied by skepticism, suffering or anguish.
Most fun sushi restaurants nyc that doctor told me "Madam, you have cancer", of course I started to cry. A heart problem what is disease and its causes detected; can you believe it, me, a man who has worked his whole life, my heart wasn't working. A tremendous threat, a tremendous uncertainty and huge vulnerability R Of course living with diabetes every day, sure it's heavy because we've all got good and bad times and, when the bad times come, then you forget about the diabetes and live as you can.
I suffer, more for them than for me. Sometimes, for example, I have urinated blood, but many causez passed before I told it. I have kept back, I suffer and they haven't even noticed. One of the categories that emerges in other studies 5,14 to illustrate the feelings the informants perceive is fear, when appears in the treatment context in this study, together with feelings like uncertainty towards what can happen.
I'm very scared of the anesthesia, and mainly of not waking up. I'm terrified of that. It's something you can't control, because you don't know what they're going to do nor how it will be. That's what enrages me, that you can't control it. The experiences in hospital are another aspect the informants address, particularly events at the Intensive Care Unit ICU.
The ICU is perceived as a solidary place. The high technical level of this environment generates trust and security in the subject, but also some degree of dependence. And they put you in that room, which I didn't know was the transplantation ICU. Dsease leave you there and you're totally what is disease and its causes, but without losing hope. You're afraid of leaving the ICU, because types of variables in epidemiology practically given you life at the ICU, you believe that the staff won't have proper professional training and you're kind of anguished when leaving R Some informants' discourse contains significant latent criticism against the health institution's management; this emphasizes that the hospitalization process should be valued, respecting patients' individual characteristics, a situation that puts the excessive specialization and the patient's treatment easy to read books meaning an object in check You realize that the patient often pays the consequences, either due to a lack of staff, lack of expertise or the staff's lack of preparation, which at a given time has to administer a machine or a technology.
Those are system flaws. The disease experience significantly affects not only the person, but also exerts close influence on the family network.
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