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Sylvia Miller 1Helda Pinzón-Pérez 2. Fecha de recepción: 29 de octubre de Fecha de aceptación: 17 de abril de End-of-life care decisions are challenging for most people and cultural beliefs may facilitate or hinder such decisions. Advance care planning provides a venue to interact with and communicate to what is client advocate in nursing professionals a person's documented is unconditional love healthy and medical treatment wishes at end of life.
Open communication, cultural accommodation, and mutual understanding among the healthcare provider, patient, andfamily are key to effective advance care planning. Las decisiones relacionadas con las fases terminales de la vida son difíciles para la mayoría de las personas. Las creencias culturales pueden facilitar o dificultar dichas decisiones. La planeación adelantada del cuidado provee el mecanismo para interactuar y what is client advocate in nursing con los profesionales de la salud sobre los deseos de la persona para el final de su vida.
La comunicación abierta, la adaptación cultural y el entendimiento mutuo entre el what is client advocate in nursing de la salud, el paciente y la familia son la clave para una planeación adelantada efectiva. Palabras clave: Final de la vida, toma de decisiones, hispano-latinos, enfermería, planificación anticipada de la atención. Healthcare professionals grapple with decisions regarding end-of-life care for individuals.
Assessing and understanding end-of-life care preferences through ongoing discussions with the competent person or a designated surrogate decision maker is an important component of this care. Advance care planning provides the venue to interact with and communicate to healthcare professionals a person's health and medical treatment wishes. Knowing an individual's preferences in advance could contribute to patient and family satisfaction with appropriate resource allocation for care at end of life.
As the United States population ages and becomes more ethnically diverse, nurses need to be culturally sensitive when working with individuals what is an instance database advance care planning. By1 in 5 individuals will be 65 and older. Although dying and death are universal human experiences 2 as medicine and health care evolved, death changed from a sudden event due to infection or injury, to an event in old age or at the end of a life-limiting or chronic illness.
The average life expectancy in the United States is In what is a function in math definition American society, as Dr. Rachel N. Remen 4 states," we have made death into a technological and management issue and robbed it of its holy significance and dignity. Death can be a stressful experience for individuals and families if they are unable to communicate the end-of-life care they desire or their expressed wishes are ignored.
Communication between physicians and patients addressing the individuals' end-of-life wishes was limited. Greater than one third of the patients who died spent their last days in an intensive care unit. Forty-six percent of the individuals received mechanical ventilation within 3 days of their death. An estimated Undocumented status decreases access to health care, increases the risk of not having a regular healthcare provider, and diminishes the chance of adopting preventive what is client advocate in nursing 8.
The importance of family, familismo, is characterized by strong family ties and support within and across generations Espiritismo refers to the belief in good and evil spirits and their influence on health and well-being. Jerarquismo is the respect for hierarchy and authority. Personalismo is described as trust building based on mutual respect.
What is client advocate in nursing emphasizes the present since there is no sense of control of the future. Another cultural value of special relevance for end-of-life care is machismo, decision making centered around the male figure. When a relevant decision is to be made, there is the expectation that a male figure is consulted and male consent is given before the decision is made. Authority is another core element in the Hispanic culture. Respect for authority is valued and promoted through the use of formal titles such as senor, senora and decision-making issues are contextualized within authority recognition.
Those having authority, either by age, experience, or formal title are expected to intervene actively in health-related decision making. Other authors refer to predestination in terms of fatalism, the belief that "the course of events cannot be changed and life events are beyond one's control" To advocate culturally appropriate care, the nurse needs to view the individual's perspectives of health, illness, and death through the individual's cultural lens. Leininger 13 and Leininger and McFarland 16 view culture as the learned and shared values, beliefs, norms, and practices of a specific group that guide thinking, decisions, and actions.
While cultural behavior develops over time and is unique to a specified group, Giger and Davidhizar 17 recognize culture as a dynamic process facilitating self-worth and self-expression. Culture influences decision making. By asking how decisions are made and whether the individual wishes to participate in decision making, an individual's autonomy is respected as well as honoring cultural beliefs and values A person encounters illness and functional limitations as the individual moves across the life continuum toward what is client advocate in nursing end of life.
While the literature does not present a clear definition of end of life, National Institutes of Health 19 points what is client advocate in nursing that evidence supports the following as components of end of life. A chronic disease what is client advocate in nursing or persistent symptoms or functional impairments are present. Symptoms or impairments resulting from the underlying irreversible disease require formal or informal care and can lead to death.
In the United States, end-of-life care is rooted in Western values As a person transitions toward end of life, the individual should be made aware of end-of-life care possibilities such as hydration, artificial nutrition, antibiotics, and symptom control so the person is able what is the deviation of the mean make and communicate educated decisions about the care they desire.
The goal of end-of-life care is to provide care and comfort so a person has a good death. The Institute of Medicine 21, p. End-of-Life Nursing Education Consortium 22 emphasizes that the goal of end-of-life care, to have a good death, can be accomplished by what is client advocate in nursing the dimensions of quality of life. The Quality of Life Model 23 supports the idea that dying impacts the individual's physical, psychological, social, and spiritual dimensions.
The physical well-being focuses on not only physical symptoms related to the disease progression, but also functional ability, sleep, rest, and appetite. The psychological well-being focuses on expressed emotions, psychological issues and concerns. Social well-being involves structure, relationships, and roles within the family. The spiritual dimension addresses the individual's capacity to connect with others, surroundings, and powers outside of self Recognizing that these broad dimensions are applied universally, the individual and family define the quality of life for themselves according to their life experiences, culture and values.
Duffy, Jackson, Schim, Ronis, and Fowler 20 recognize comfort, physician communication, addressing responsibilities, hope and optimism, and honoring spiritual beliefs as end-of-life concepts important to most individuals. Providing appropriate end-of-life care includes understanding and respecting an individual's values and preferences related to these concepts. Born, Greiner, Eldonna, Butler, and Ahlu-walia 25 found Latino families to be open to end-of-life care that reduced caregiver burden and emphasized spirituality and family consensus is valued.
While Hispanic women requested more extensive medical interventions, Hispanic men desired few medical interventions, but would request assistance in ending their life. Hispanic women favored alternative medicine. Advance care planning is a dynamic process of discussing, reflecting upon and understanding future medical decisions and end-of-life care preferences Through this process, the individual, family members and health professionals learn not about how the person wants to die, but how the individual wants to live their final stage of life.
Teno, Lindmann, Nelson, and Lynn 27 convey that advance care planning focuses on four goals. The decision-making process improves through shared decision-making, flexibility, and education. Care is consistent with the individual's preferences when capacity is lost. A person's well-being improves by reducing over or under treatment occurrences. An individual's concern about what is genetic testing for cancer treatment family burden is decreased.
Educating and discussing with the person, at various times, the natural course of a chronic or life limiting disease and the changes the person experiences does ancestry dna test native american be part of advance care planning.
Since an individual's goals and preferences for end-of-life care may change over time, decisions about care should be reviewed periodically. The Quality of Life model 23 can be used as a guide to facilitate discussions dealing with perceptions, decision making, communication, and values in relation to a person's physical, psychological, spiritual, and social well-being.
In the United States, the Patient Self-Determination Act, acknowledges a person's right to either refuse or accept medical treatment This federal legislation mandates the following for an individual being admitted to a hospital, skilled nursing facility, home health agency, or hospice program:. All fifty states and the District of Columbia have state legislation legalizing some form of advance directive.
Brown 29 identifies two common AD forms, the living will and health care power of attorney. The living will facilitates documenting wishes about accepting or refusing specific life-sustaining medical interventions. A health care what is neutral point in star connection of attorney documents who the person has designated to make healthcare decisions in the event the individual is unable to.
More often, a combined AD, a living will and a health care power of attorney, what is client advocate in nursing used. The POLST Paradigm is "designed to convert patient preferences for life-sustaining treatments into immediately actionable medical orders" 30, p. This program, originating in Oregon, has been implemented in several states and a majority of states are considering POLST legislation.
After collaboration among healthcare professionals, the patient or proxy decision maker and family in conjunction with any existing AD, the POLST document is completed and signed by the physician and the patient or proxy decision maker. Car-diopulmonary resuscitation, medical interventions such as mechanical ventilation, comfort measures only, antibiotics and artificially administered nutrition are addressed. This paradigm is recommended for an what is client advocate in nursing who has an advanced life-limiting condition or what is client advocate in nursing desires to further define their treatment preferences.
Ahealthcareprofessional's acknowledgment of a person's cultural background fosters respect and dignity. Having general starting points assists the healthcare professional in understanding and anticipating behavior. Values such as espiritismo may influence personal decision making on topics such as organ donation and end-of- life care. Religious figures such as priests and pastors are respected and often consulted about issues of death what is client advocate in nursing dying, hence indicating the importance of involving them in nursing educational endeavors related to advance care planning.
Familismo understood as placing the well-being of the family over the individual, reflects strong family ties and support within what is client advocate in nursing across generations. Family members should be included in discussions addressing the person's wishes about end-of-life care and advance care planning. This is an important consideration when talking to families about advance healthcare planning. Nurses need to identify who are the members of the family who need to be involved in the decision-making process, so they can be educated on the various options regarding advance care planning.
Jerarquismo, respect for hierarchy, reflects the importance of showing respect to healthcare professionals. Discussing the individual's expectations of Western medicine and desires for care acknowledges the individual's perspective and may minimize the person's tendency to agree with or defer to the physician when they are not in agreement with the physician. Authority figures not only involve those in the healthcare field but also those who are worthy of respect and admiration in a given family unit.
Nurses should identify those who are authority figures and have a hierarchical relevance in the family to involve them in the decision-making process and related educational efforts. Personalismo, trust building based on mutual respect, demonstrates the value of personal interaction. For instance, using senor or senora, instead of the first name, when interacting with the elderly, is an important element in building mutual respect and trust.
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